Makes you wanna dance

How awesome is our God? For those of you who don't know these two wonderful people, this is Kevin (our pastor) and his wife Tonni. Tonni was my 8th grade teacher and also my Color Guard coach. For the last 2 years since my mom passed almost 7 years ago, they have been like my mom and dad (even though they are not old enough ha ha). I could not have imagined this pregnancy and afterwards without them. This is the first time that they have seen the boys outside of the hospital together. This is also the first and only picture we have of the boys with them. We are going to have to change that!

On that note, today was Aiden's eye appointment. Nothing has changed... nothing worse nothing better. SO we are in the same spot we were this time last week. We go back next Friday to see how things are progressing or regressing. I will keep everyone in the know!

Complications and hurdles galore

December 26, 2007
Hello everyone. Today we went to Aiden's eye appointment and the doctor has discovered he has developed a disease called Retinopathy of Prematurity (ROP). Which means that the retinas are not fully developed. Some of his blood vessels in the immature part of his retina have developed abnormally. Right now the doctor said he is in stage 3 moderate. It could need laser treatment so we have to go back on the 4th to see if it has progressed. His type of ROP can lead to retinal detachment and permanent loss of vision that is not treatable by glasses laser or surgery. If it has progressed then they will do laser surgery and stop the growth the blood vessels and then he will have nearsightedness. So if everyone can please lift Aiden up in your prayers. This little man has been through so much and he has beat so many odds. It goes to show how well prayer pays off.

December 29,2007
Good evening everyone. We have yet another hurdle to jump. Last night I was at the ER at Children's with Aiden. He has some fungal issues around the site of his ostomy as well as a stoma hernia. These can happen since a potential site of weakness is formed with the stoma site. The surgeon is not too concerned with the hernia, but he did say that Aiden will be ready for surgery soon. We go on the 25th of January to see the surgeon and he will then let us know what the plan is. The hernia is not painful, but it can be uncomfortable when he lays on his belly or on his right side (the side where his stoma is). But to help him developmentally we have to allow him time on his sides and belly. As always, I will keep everyone updated.

December 30, 2007
This evening has been pretty laid back. The boys got their baths and are now settling down for the night. When we changed Aiden's ostomy, we noticed that his hernia has grown in size since Friday evening. But the discomfort has not changed any so we are not too worried. Nate has a cough :( If it doesn't clear up by tomorrow I am going to call his doctor and see what he thinks. What true blessings my boys are.