September 27, 2007
We didn't have our normal doctor's today at the ultra sound. Dr. Evans said that it seems like both boys have stopped growing. He said on Monday when we go to the ultra sound, their growth from 2 weeks ago will determine when we need to deliver. They can be here as early as next week guys. Please pray that he was wrong. Please pray that there is something he just is not seeing. He was paging Dr. Livingston (the doctor that did our surgeries) when we left. I go to see my Ob today at 2:45, so maybe he will have more news when we get there. These babies are not big enough to be born yet, they are too small. I don' even want to think about the percentages of survival. Right now, Aiden is only like 4th-6th percentile in growth right now, and Nathaniel our larger baby is dropping off as well Dr. Evans said. Our next ultra sound is on Monday at 9:30 am. Dr. Saldana the doctor that diagnosed us will be there, so that is comforting. In a case like this it is confusing to have so many "hands in the pot". I will let you guys know if we hear anything different from Dr. Calagaris today, or if Dr. Livingston happens to call. If not we won't know anything for sure until Monday.
In His name,
Kat
Psalm 18: 1-6, In my distress I called to the Lord, I cried to my God for help. From His temple He heard my voice, my cry came before him, into His ears. 18:16, He reached down from on high and took hold of me; He drew me out of deep waters.
Thursday, November 8, 2007
Ultra sound and Kyle's birthday
September 24, 2007
Today we had an ultra sound. Dr. Saldana the doctor that diagnosed us with the TTTS was at our ultra sound and he was very pleased with the babies overall health. Things are slowly starting to get better. Kyle said the only thing he wanted for his birthday was for his babies to still be "baking" and they are "baking" just fine :) Katie snuck me out of the house today so I could go and get Kyle a birthday gift and a card. Yes I was in a wheel chair, I did very little walking. But so far so good guys. Thank you for all your prayers and thoughts.
Today we had an ultra sound. Dr. Saldana the doctor that diagnosed us with the TTTS was at our ultra sound and he was very pleased with the babies overall health. Things are slowly starting to get better. Kyle said the only thing he wanted for his birthday was for his babies to still be "baking" and they are "baking" just fine :) Katie snuck me out of the house today so I could go and get Kyle a birthday gift and a card. Yes I was in a wheel chair, I did very little walking. But so far so good guys. Thank you for all your prayers and thoughts.
Update on the boys
September 21, 2007
Today we had an ultrasound and an echo. There was no change positive or negative. Which is not great but obviously it is not bad. The doctor said so far there is no reason I need to deliver right now, so we will wait another week. We are really going week by week now. He wants to wait at least 2 more weeks so the boys can gain some weight. Obviously if they are still doing well in 2 weeks, then e will still go week by week and determine if it is ok to keep baking them, or if it is better to bring them out so they can help them in NICU.
We are well over the 72 hour mark, which we didn't even think Aiden was going to make it past the 24 hour mark. Our babies are fighters thats for sure. So now, every Monday and every Thursday I have an ultra sound so they can monitor them closely.
Bed rest is getting a little boring, but it is going to make me gain weight which in turn will make our babies gain weight, so that is another sacrifice I am happy to make.
I am still a little bit sore from surgery, but they said it will take a little time for that to pass. The incision looks pretty good, the stitches are on the inside and those will dissolve, and there is basically super glue on the outside holding it together.
Everyone who has been bringing meals I would like to thank you so much. It is nice to know that we don't have to worry about when we are going to have time to go to the store or what we are going to have for dinner, and when Kyle is at work, that leaves Adam and I here and I am unable to stand for long periods of time, so me standing up to make a meal is not going to happen.
I will continue to keep everyone informed on our progress. I am just glad to be able to take time to sit and thank God over and over for standing up to the challenge of our true God sent miracles.
Today we had an ultrasound and an echo. There was no change positive or negative. Which is not great but obviously it is not bad. The doctor said so far there is no reason I need to deliver right now, so we will wait another week. We are really going week by week now. He wants to wait at least 2 more weeks so the boys can gain some weight. Obviously if they are still doing well in 2 weeks, then e will still go week by week and determine if it is ok to keep baking them, or if it is better to bring them out so they can help them in NICU.
We are well over the 72 hour mark, which we didn't even think Aiden was going to make it past the 24 hour mark. Our babies are fighters thats for sure. So now, every Monday and every Thursday I have an ultra sound so they can monitor them closely.
Bed rest is getting a little boring, but it is going to make me gain weight which in turn will make our babies gain weight, so that is another sacrifice I am happy to make.
I am still a little bit sore from surgery, but they said it will take a little time for that to pass. The incision looks pretty good, the stitches are on the inside and those will dissolve, and there is basically super glue on the outside holding it together.
Everyone who has been bringing meals I would like to thank you so much. It is nice to know that we don't have to worry about when we are going to have time to go to the store or what we are going to have for dinner, and when Kyle is at work, that leaves Adam and I here and I am unable to stand for long periods of time, so me standing up to make a meal is not going to happen.
I will continue to keep everyone informed on our progress. I am just glad to be able to take time to sit and thank God over and over for standing up to the challenge of our true God sent miracles.
Home from sugery, 13 needle sticks and bed rest to boot
September 20, 2007
Hey everyone. Surgery went well. I am very sore, the incision is very small, but they passed over my uterus 3 times, so my insides hurt pretty bad. During surgery the doctors have found out that Nathaniel our larger baby has 85% of the placenta. Aiden the smaller baby only has 15%. They didn't think Aiden was going to make it over the first 24 hours while I was in the hospital after the surgery. I had surgery Tuesday morning, it started at 8am, and it ended around 11. After cutting all the ties between both babies (13 vessels total), as I said they were not sure if Aiden would make it the first 24, let alone 48 hours. Yesterday morning I had an ultra sound to see how the babies hearts, bladders, and other organs were working, and to see if Aiden was doing ok. My doctor was shocked with how well BOTH babies are doing. Since we found out 2 weeks ago, Nathaniel has went from 1lb 6oz to 1lb 9oz, and Aiden the smaller baby has went from only 1lb to 1lb 6 oz! He has gained 6 oz and Nathaniel has gained 3oz! God truly is amazing and is facing this challenge and holding my babies hands through all they have been so far. I came home yesterday afternoon since the doctor was so pleased with the outcome of the surgery. This morning Aiden was actually the one who woke me up by giving me a swift kick in my ribs :) Believe it or not, that is such a wonderful feeling when you are not sure the fate of your unborn child. Today I am 25weeks and 5 days. We really are taking everything day by day, and every minute counts with this. I have tons of new ultra sound pictures that I will have Kyle scan in for me since I am not to get up unless I need to use the bathroom, and when I do that I have to combine my trips to the fridge as well. I will keep everyone updated on progress of the boys, we have to have an ultra sound twice a week to check their health and development. We want to thank everyone for their love and support in this trying time.
xoxo
kat
Hey everyone. Surgery went well. I am very sore, the incision is very small, but they passed over my uterus 3 times, so my insides hurt pretty bad. During surgery the doctors have found out that Nathaniel our larger baby has 85% of the placenta. Aiden the smaller baby only has 15%. They didn't think Aiden was going to make it over the first 24 hours while I was in the hospital after the surgery. I had surgery Tuesday morning, it started at 8am, and it ended around 11. After cutting all the ties between both babies (13 vessels total), as I said they were not sure if Aiden would make it the first 24, let alone 48 hours. Yesterday morning I had an ultra sound to see how the babies hearts, bladders, and other organs were working, and to see if Aiden was doing ok. My doctor was shocked with how well BOTH babies are doing. Since we found out 2 weeks ago, Nathaniel has went from 1lb 6oz to 1lb 9oz, and Aiden the smaller baby has went from only 1lb to 1lb 6 oz! He has gained 6 oz and Nathaniel has gained 3oz! God truly is amazing and is facing this challenge and holding my babies hands through all they have been so far. I came home yesterday afternoon since the doctor was so pleased with the outcome of the surgery. This morning Aiden was actually the one who woke me up by giving me a swift kick in my ribs :) Believe it or not, that is such a wonderful feeling when you are not sure the fate of your unborn child. Today I am 25weeks and 5 days. We really are taking everything day by day, and every minute counts with this. I have tons of new ultra sound pictures that I will have Kyle scan in for me since I am not to get up unless I need to use the bathroom, and when I do that I have to combine my trips to the fridge as well. I will keep everyone updated on progress of the boys, we have to have an ultra sound twice a week to check their health and development. We want to thank everyone for their love and support in this trying time.
xoxo
kat
Emergancy Surgery re-scheduled for tomorrow
September 18, 2007
Many of you know this and many are hearing this for the first time, the babies are suffering from something called TTTS (twin to twin transfusion syndrome) Which means the bigger of the twins is taking all of the nutrients. Last week the dr. did a minimally invasive proceedure that seemed to be working. Unfortunately, we found out today that Nathaniel, the larger of the twins has a thick heart wall, twice as thick as it was last week. The dr. has said that, for either of the babies to survive, they are going to have to do a more invasive surgery. It is scheduled for 6:00 tomorrow morning.
They are going to have to cauterize the blood vessels that the two babies are sharing to try to stop the TTTS. This has so many implications. If Aidan (the smaller twin) has less than 20% of the blood vessels, he isn't going to survive if they go through with the surgery. But, if they don't do it, neither twin will survive. Nathaniel's heart walls will continue to thicken and he'll go into heart failure.
The surgery is being done at Children's. After recovery, I will be transfered to University Hospital for observation. The surgery has a 20% chance of causing labor. The twins are at 25 weeks gestation.
Once allowed home, I will be on bedrest until delivery. I'll be allowed to come downstairs when I get up in the morning and stay there until I go to bed at night. I can get something to eat only when I am up to use the bathroom.
Many people keep asking what I need. It is not me that needs anything, it is my babies and my family that need prayers. That is what I need.
Many of you know this and many are hearing this for the first time, the babies are suffering from something called TTTS (twin to twin transfusion syndrome) Which means the bigger of the twins is taking all of the nutrients. Last week the dr. did a minimally invasive proceedure that seemed to be working. Unfortunately, we found out today that Nathaniel, the larger of the twins has a thick heart wall, twice as thick as it was last week. The dr. has said that, for either of the babies to survive, they are going to have to do a more invasive surgery. It is scheduled for 6:00 tomorrow morning.
They are going to have to cauterize the blood vessels that the two babies are sharing to try to stop the TTTS. This has so many implications. If Aidan (the smaller twin) has less than 20% of the blood vessels, he isn't going to survive if they go through with the surgery. But, if they don't do it, neither twin will survive. Nathaniel's heart walls will continue to thicken and he'll go into heart failure.
The surgery is being done at Children's. After recovery, I will be transfered to University Hospital for observation. The surgery has a 20% chance of causing labor. The twins are at 25 weeks gestation.
Once allowed home, I will be on bedrest until delivery. I'll be allowed to come downstairs when I get up in the morning and stay there until I go to bed at night. I can get something to eat only when I am up to use the bathroom.
Many people keep asking what I need. It is not me that needs anything, it is my babies and my family that need prayers. That is what I need.
No Surgery!
September 16, 2007
Dr. Livingston was not at this one again today, but the lady who did it was very nice, and tried her hardest to get 3D pictures of the boys, but they were being stubborn as always. Good news is we don't have to have the surgery tomorrow! The fellow nurse called Dr. Livingston and gave him all the readings, and he is pleased and said he is seeing a positive change. We still have a 2 week window from now if we need to do the laser surgery as an emergency. But he thinks that the amniotic reduction is working for our case! The boys fluid levels were almost the exact same, which means that Aiden is producing fluid again, and Nathaniel is not putting out too much! That is such a relief! We go tomorrow for an Echo and an extensive ultrasound then we will meet up with the team of doctors again and see what they have to say about everything. I will post again tomorrow to let you know the news!
Dr. Livingston was not at this one again today, but the lady who did it was very nice, and tried her hardest to get 3D pictures of the boys, but they were being stubborn as always. Good news is we don't have to have the surgery tomorrow! The fellow nurse called Dr. Livingston and gave him all the readings, and he is pleased and said he is seeing a positive change. We still have a 2 week window from now if we need to do the laser surgery as an emergency. But he thinks that the amniotic reduction is working for our case! The boys fluid levels were almost the exact same, which means that Aiden is producing fluid again, and Nathaniel is not putting out too much! That is such a relief! We go tomorrow for an Echo and an extensive ultrasound then we will meet up with the team of doctors again and see what they have to say about everything. I will post again tomorrow to let you know the news!
Iffy ultrasound
September 15, 2007
Today Dr. Livingston said he would be at the hospital with us while we have our ultra sound done, but he sent one of his partners to do it instead. We got there a little before 9am, and she didn't even get into the room until 10:45. She had an ultra sound, so we had to wait for her to get done and all. She got the umbilical cord flows mixed up and got our hopes up since it seemed as if Aiden's blood flow in his cord looked almost identical to what Nathaniel's looks like, well it turns out she had just mixed them up, and when we got the reading for Aiden's actual cord flow, there was no change good or bad. So we are still going to have the laser procedure done on Monday. I have to be at Children's Hospital at 6am, and it will take a few hours to do, and I have to stay over night. After this surgery, I am on strict bed rest, and that really scares me.
We have another ultra sound again tomorrow, so I will give everyone an update as soon as we get back.
Today Dr. Livingston said he would be at the hospital with us while we have our ultra sound done, but he sent one of his partners to do it instead. We got there a little before 9am, and she didn't even get into the room until 10:45. She had an ultra sound, so we had to wait for her to get done and all. She got the umbilical cord flows mixed up and got our hopes up since it seemed as if Aiden's blood flow in his cord looked almost identical to what Nathaniel's looks like, well it turns out she had just mixed them up, and when we got the reading for Aiden's actual cord flow, there was no change good or bad. So we are still going to have the laser procedure done on Monday. I have to be at Children's Hospital at 6am, and it will take a few hours to do, and I have to stay over night. After this surgery, I am on strict bed rest, and that really scares me.
We have another ultra sound again tomorrow, so I will give everyone an update as soon as we get back.
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